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Southbury, CT- 27 June 2014-062714CM03-  Alex Santos Owens, 20 months old, of Southbury, plays with his mother, Diane Owens inside their home in Southbury on Friday. Alex who was born with neurofibromatosis, a genetic disorder inspired his mother to run a benefit half marathon next month in Chicago.  The race will help her raise money for the foundation that helps families of children with this disorder.   Christopher Massa Republican-American